Monday, May 7, 2012

I wish...

I wish someone had prepared me for the worry that comes along with parenthood.  In all honestly though, I don't think its something that you can adequately prepare for, it is on the job training at its best!  Its not that I thought parenthood would be worry free, I just didn't understand what it would feel like, the way it can keep you up at night when you are already weary, the way it pulls at you, the way you are drawn to google even when you know you shouldn't, the way it reminds you that despite your best wishes for you child, there is only so much you can control.

We have two amazing and blessed children, in our humble and unbiased opinion!  In the broad scheme of life they are healthy, happy and well adjusted, they pass the eye test.  Despite our constant blunders, they are surviving us.  That being said, we have had some health concerns with Luke.  Sometimes I get pretty bummed out when I think of how many doctor's visits he has had in his short 30 months and how many specialists he has seen.  Then we make another trip to Children's Mercy and I see the despair of so many parents and I am ever so grateful that we are there for the reasons that we are and I hold our little man just a little tighter and say a thank you to God that he is as healthy as he is.  I am grateful that these are the issues that we face and that he comes home with us each night and runs and plays as any child should.

As most of you know, we have been somewhat concerned with Luke's slowed growth since he was about 9 months old.  I was told that all kids growth and appetites slow at this point in time and as they become more mobile.  In all honesty we weren't shocked that he didn't weigh a lot, but we started to grow concerned when between 9-24 months his height barely increased.  I would listen to other parents talk about how their kids practically grew over night, that their clothes were always too small, that they were always buying new shoes before the old ones wore out.  Luke on the other hand rarely outgrows his clothes, he wears the same size shoe as last summer and we watched as kids 6 months+ younger than him slowly started to creep past him in height.  In February after a height and weight check that again showed him at the 5th percentile for both height and weight, we were referred to an endocrinologist.  Friday was our first visit.  We had already ruled out many disorders through blood work so I knew going in that he didn't have an Endocrine disorder or Celiac Disease etc.  Some blood work had shown a low insulin like growth factor so we were prepared for that discussion.  The Endocrinologist believes that Luke has Constitutional Growth Delay.  Basically kids with this have decreased growth during the first three years of life, but then grow at a normal rate, just on the low end of the curve.  Bone age xrays in these children show that their bone age is actually younger than their chronological age.  When puberty hits these children are often again delayed behind their peers which further accentuates their slowed growth, for some kids they achieve their full height potential just a few years later than their peers, for other kids they need growth hormones, or medications to help keep the growth plates open longer if they fall too much below the curve during puberty.  Based on our heights, the Endocrinologist believes that Luke should be in in the 90th percentile for height, not the 5th.  We are holding out hope that Luke can achieve his full potential height.  One of the concerns with kids that have CGD is the emotional stress of not only being small, but going through puberty later than their peers.  At this point though it is just too early to know what will happen, hopefully Luke catches up over time and it won't be a challenge for him in high school, but in the mean time it is a hurry up and wait scenario.  To add insult to injury, Luke's asthma medications can have negative growth side effects, so we are working to balance the least effective dosage of asthma medication to potentially improve growth with keeping him breathing well.  The positive is that in the last 6 months at the higher dosages of these meds Luke has still gained 2lbs and grown just under 2 inches, which for him is HUGE growth! I know I can't worry about that which I can't control, but you always want the most peaceful road for your children, this world is tough enough without other hindrances.  I am grateful that there is nothing more serious going on though.  And, on the bright side, Luke and Bo might wear the same size clothes which would make shopping and laundry a whole lot easier! :)

In the mean time, please keep our little man in your thoughts and prayers.  Please pray that he grows strong, whether that it is height and weight or in character (hopefully both!).  Mostly, we want him to be healthy and confident.  Please keep him in your thoughts Thursday morning also when he gets his second set of ear tubes!

Thursday, May 3, 2012

Patio

Two babies, two massive dogs that destroy the grass chasing squirrels, spring time rain, big muddy paws, a doggy door, a tired full time working mommy...this is a LOSING combination!  After resodding a portion of a backyard the last few springs only to have the dogs destroy it over the winter and trek massive amounts of mud in to our home, we finally surrendered.  Last month we took out the landscaping and grass behind our deck and added a flag stone patio and fire pit.  Functionally, it was necessary to do something in that area that didn't involve grass.  Practically, we live on a busy corner and kids needed a place to ride trikes and scooters.  Realistically, we spend a lot of time at home now and needed to make our outside area more fun, not just for the kids but for mom and dad too! We have spent almost every evening and all weekend outside since it was finished and we are so happy we finally made a change!

We toasted the deck with a marsh mellow roast for S'mores a few weekends ago while my brother was here.  Last weekend, Drew and I pulled a TV out on the patio, built a fire and watched the Royals (lose) game.  We have grilled hot dogs over the open flame for dinner with Luke and just had a great time!  It's going to bring us years of fun and we hope to host little campouts in our backyard for the boys and their friends as the years go by.  

Pretty good Saturday night...Beers, Fire and Baseball!

Hot Dogs!



First Keller S'mores Night!

Hanging with Uncle Aaron

So GOOD!!!!



Giggles...

There is lots of giggling going on around here these days...the boys think they are pretty funny and giggle at each other...the rest of the time we have lots of "mine", "no" and tears...but lots of giggling too (thankfully)!  It is really starting to get fun as Bowen becomes more mobile...the kids chase each other around, play peak a boo and get into mischief!  This week Drew was out of town and at night when Luke and I would put Bo in his bed, Luke would cry "No, mommy I stay with my brudder, I stay with Bo, Bo!"  He was just devastated that they couldn't sleep in the same bed together...it was very sweet.  Sometimes at daycare Luke refers to himself as "Bo Bo's brudder."  Luke loves to sing songs and last week we were singing a song before bed; the words are "you fill the world with happiness you bring us joy each day" and Luke sang "you fill the world with happy feet and bring us toys each day!" Every night he tells me "Love you moon to back mommy."

Bo turned 10 months this week and I cannot believe that in just a few short months he will turn one.  This year has gone by so quickly.  Bo got his first two teeth over the weekend and handled it like a champion, wouldn't have even known he was teething, hopefully that trend continues!  He is in to everything and starting to develop very strong opinions about how things go in the house.  He throws little fits when he doesn't get what he wants and Drew and I are little frightened for what the toddler years will bring if he is already so strong willed!  He seems to have no fear what so ever...frightening to say the least.  He has eaten KC's best in food...the kid loves Stroud's and Gate's and we are enjoying having a child that enjoys food as much as we do!  He absolutely adores books, loves to point at the pictures and turn the pages and sits STILL and QUIET when I read to him.  He and Luke are SO different in almost every way!



Always at each others heals...





Bo may think Luke hung the moon...


He looks so much like Drew here...


We love watching these two grow in to amazing little men, who make us laugh and run our world!